Recap & Review - Endo 101: The Truth, The Myths, The Answers (Wear Yellow SG EndoMarch 2025)

This Zoom session, on 9th March 2025, was part of Wear Yellow SG EndoMarch 2025, proudly organised by E for Endometriosis.

This year, we embraced a virtual format—not just out of necessity but with deep intention. With Ramadan underway, we wanted to create a space where everyone could join in comfort from wherever they are—because awareness should have no barriers, and learning should feel safe, accessible, and empowering.

💛 Endometriosis is complex, deeply personal, and often misunderstood. That’s why this session wasn’t just about medical facts—it was about unlearning the myths, relearning the truths, and finding clarity in a world that often dismisses pain that isn’t visible.

To everyone who joined us: thank you. Thank you for your presence, your questions, and your courage. The conversation was raw, necessary, and long overdue. The questions asked today were not just thought-provoking—they were a testament to the silence that so many have endured for too long.

To ensure that learning, advocacy, and access to Endometriosis resources remain continuous and available to everyone, this session was live-streamed on our YouTube channel, E for Endometriosis. You may also view it here:

This means that anytime you need to revisit the session—whether for reflection, reassurance, or to share with someone who might benefit—it will always be there for you.

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I’m beyond thrilled to see just how much advocacy has transformed the conversation over the years. The difference between the audience in 2015 and now is remarkable. It’s incredible to witness more and more people feeling empowered to take charge of their health, ask the hard questions, and reshape their narratives.

Every question asked today matters. No voice will go unheard. Right now, I’m working with Dr. Ma Li on recording a video to answer the remaining questions, because knowledge should never be limited to time constraints.

💡 Anything that helps someone make an informed decision is worth doing. This is not just about advocacy. It’s about dignity, autonomy, and making sure no one has to navigate this alone.

I’ll share more in the next few posts once everything is finalised. Until then, keep learning, and most importantly—keep believing that your voice matters. 🎗️✨

💛 Let this not be the end. Conversations like these are not just one-time events; they are part of something bigger—a movement, a fight for change, and a call to end the silence around Endometriosis.

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💛 Endo 101: The Truth, The Myths, The Answers – Extended Livestream Now Available 💛

During our previous session, we received an overwhelming number of heartfelt, thought-provoking questions from the community. In response, we promised a follow-up livestream to answer them all—and we kept that promise. This extended session is now available on our YouTube channel: E for Endometriosis. Or simply go to the link below:

To make your viewing experience easier, we’ve included timestamps for all 25 questions directly in the video description. Simply browse the list and click on the time next to the question you'd like to explore.

Every question reflected someone’s search for clarity, support, or a way forward—and we are deeply grateful to each of you who submitted them and helped make this initiative meaningful and impactful.

If this session has been helpful to you, we encourage you to share it with someone who might need it too. The full video will remain available for anyone seeking knowledge, hope, and community.

And we’re not stopping here.

Join us for our next session:

"Endometriosis in Asia: When Will the Silencing End?"

For the first time, patient advocates from Singapore, Malaysia, and Indonesia are coming together for a groundbreaking dialogue on the physical and mental impact of Endometriosis across the region.

Register now at eforendometriosis.eventbrite.com

Because the silence ends with us.

In this video, we answered:

1. Many doctors claim to specialise in Endometriosis, but how can we truly determine if they have the expertise? Are there any guidelines or criteria for identifying a qualified Endometriosis specialist? @01:28

2. What causes Endometriosis? I've heard it may be hereditary and could develop during foetal development. Is this true? @05:33

3. Is generic Dienogest as safe as branded versions? Are all hormonal treatments safe long-term? I heard that they carry risks like bone loss, metabolism changes, mental health effects, weight gain, and Gl issues. Is this true? How can patients minimise risks? Are there safer non-hormonal alternatives for Endometriosis management? @07:43

4. How does egg count correlate with fertility chances? Will Dienogest medication impact egg count in the long run? @16:40

5. For those with long-term Dienogest, what can we expect after reaching menopause age? @16:40

6. Why do some doctors still believe outdated myths like 'pregnancy treats Endometriosis' or 'hysterectomy cures it'? How can we push for better education in the medical field? @19:11

7. What is an effective option to treat bowel endometriosis? @22:10

8. Is Medroxyprogesterone Acet 150mg/3ml Depot a good treatment for Endo? What is the efficacy, and what are the side effects? @26:47

9. How can we push for the recognition that endometriosis is a pertinent health issue for women of all ages and not just categorised as 'chronic pain'? @28:55

10. What does a patient need to prepare before and after surgery to remove endometriosis? @33:09

11. Is there any relation between Endometriosis and miscarriage? @34:09

12. Is there any medicine/supplement to help manage period cramps when painkillers don't really help? One doctor that I visited suggested evening primrose, but I don't think it helps improve my cramps much. How do we get a referral to your clinic for your scans? @37:36

13. Do you have any recommendations of scans out there that can detect this? What's the most common symptoms? @37:36

14. What is the cost of initial work up including scanning bloodwork in private practice? @46:07

15. Since there's an overlap between endometriosis and IBS, should females with endometriosis go on a low FODMAP diet? or what's the proper management? @48:13

16. Is there a relationship between the food we consume and the inflammation of endometriosis? @48:13

17. Can blood tests help indicate the presence of Endometriosis? If so, what specific blood markers or tests should be considered? @50:46

18. Would you have basic guidelines for pain management for different types of pain? I can't possibly take Tramadol daily @52:22

19. Is it normal to have prolonged pinkish discharge post menses when you have endometriosis? E.g. more than 10 days. @54:59

20. Can Tranexamic acid & pain killers be used to manage Endometriosis and Adenomyosis long-term? @56:30

21. Are there any alternatives to Visanne, since endometriosis is an inflammatory condition? Are there new drug candidates in development currently? @58:08

22. Could exercise and manual therapy help with adhesions due to endometriosis? At least to keep the tethered areas fairly mobile? @1:01:05

23. What are endometriotic plaques, and is there a criterion for excision? @1:02:40

24. Is your advice for teenagers typically the same as for adults? As in, is it better to get lesions excised before they become a bigger problem or leave them? I've heard time and time again that it usually comes back. @1:04:14

25. Given the advancements in excision surgery, why is ablation still commonly performed despite its lower success rate? @1:11:12