After five years of creating a buzz on Endometriosis awareness through Instagram (@e4endo), E for Endometriosis was finally ACRA registered in 2017. Singapore Endometriosis Support Group (the FB Page) was set up the following year upon receiving encouraging support from Bharti (former Benign Gynae Nurse Specialist at National University Hospital) & Doctor Ma Li (an accredited Ob-Gyn specialist who runs the Endometriosis Clinic in NUH). The FB page is created to provide a safe space for patients, caregivers, and like-minded people to interact and support each other on matters relating to Endometriosis. In 2021, the official website www.endosupport.sg was launched in conjunction with Endometriosis Awareness month.
To ensure genuine participation, membership requests are tagged with evaluation questions that must be answered duly and correctly. This is to prevent scams & malicious intent from perpetrating.
Once the requests are accepted, members must adhere to the group rules. Should a member violate any of the rules, he/she will be removed immediately.
Below are the in-depth group rules:
1) Be kind and courteous
We're all in this together to create a welcoming environment. Let's treat everyone with respect. Healthy debates are natural, but kindness is required. So no name & shame, name-calling, etc.
2) No promotions or spam
Give more to this group than you take. Self-promotion, spam, and irrelevant links aren't allowed. Any actions (postings, personally approaching the members, etc.) that are construed with personal monetary profits (business, insurance, schemes, etc.) will be deleted immediately, and the member removed.
We hope to provide a platform for our members to feel safe and not be deluded into taking in information that has no basis and is not supported by proper channels specializing in Endometriosis or having any associations with personal business schemes.
3) No sharing, giving away, & selling prescriptions drugs
Even though it may seem harmless to share/giveaway/sell prescription drugs with a friend or family member, doing so involves many risks with potentially dangerous consequences.
One most prominent reason is that it’s ILLEGAL here in Singapore. You may refer to the article below for more information:
4) Respect everyone's privacy
Being part of this group requires mutual trust. Authentic, expressive discussions make groups great but may also be sensitive and private. What's shared in the group should stay in the group.
As much as we try to keep our members safe, we have cases where fraudulent schemes happen within this group. Fortunately, the members are vigilant and hold the same sense of responsibility in keeping this platform safe. We were able to eradicate them thus far, all thanks to you, our fellow warriors. Please continue to be our eyes and ears. Together, we can make this space safe for all.
The frequently asked topics are collated and listed below for the benefit of the new members as well as for easy reference:
1) What is Endometriosis? Common symptoms? Diagnosis, stages & treatment?
2) Is there an explanation in Mandarin I can refer to?
3) Is there an explanation in Malay I can refer to?
4) Is there an in-depth video explanation on Endometriosis, common symptoms, diagnosis, stages, and treatment by a recognized Endometriosis specialist here in Singapore I can refer to?
5) Who are the recommended Endometriosis specialists/Obstetrics and Gynaecology specialists (both in public & private hospitals) here in Singapore?
6) What are the tips for finding a good doctor?
7) Are there any Endometriosis Clinics in Singapore?
8) What is the link to the Endometriosis self-assessment questionnaire?
9) How do I use the subsidy route in Singapore’s public hospitals?
10) How do I make an appointment with Doctor Ma Li?
11) How do I reach out to Doctor Ma Li?
Doctor Ma Li is the Singapore Endometriosis Support Group (FB page) moderator. Request membership and direct message her from there.
12) What are the recommended complementary and alternative healthcare approaches (nutritionist, naturopath, physiotherapy, spine manipulative therapy, acupuncture, tui na, gua sha/scrapping, moxibustion, traditional herbal medicine, etc.), and where?
13) Is there an in-depth video explanation on Endometriosis and physiotherapy by a Pelvic Health Physiotherapist here in Singapore that I can refer to?
14) Is there any Endometriosis related survey done here in Singapore?
15) What is Pelvic Congestion Syndrome (PCS) / Pelvic Venous Disorder (PVD)?
16) Can Covid-19 Vaccine affect the period?
1) How do you stay motivated and committed?
2) How do you receive your diagnosis?
3) How do you manage your pain?
4) How do I share my stories on the website?
I hope the information will be to your benefit.
Keep winning! 🎗💪
Namira Mohamad Marsudi
E for Endometriosis